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Newly diagnosed - neuroendocrine tumor in intestines

Neuroendocrine Tumors (NETs) | Last Active: Feb 5, 2023 | Replies (44)
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@tennisfan

Hi. I ask have had three surgeries and to date no other treatment. However, I was just diagnosed with another tumor that for numerous reasons is inoperable. Protocols not yet determined. I will post you. Smart to take your case to a university/teaching hospital.

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Replies to "Hi. I ask have had three surgeries and to date no other treatment. However, I was..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 2, 2023

@tennisfan

I appreciate the update but sorry to hear that an inoperable tumor was found. You must be very disappointed. What type of scan/test was used to find this tumor?

I look forward to hearing from you again and I hope that you continue to post during this process.

Was the tumor found based on symptoms you were having?

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tennisfan | @tennisfan | Feb 3, 2023

Just off a virtual call with the doctors. They are putting me on a regimen of monthly Octreotide injections to shrink the tumors and reduce the carcinoid symptoms.

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