Connect
← Return to Pancreatic Cancer Group: Introduce yourself and connect with others
Discussion
Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 3 hours ago | Replies (1383)Comment receiving replies
Hello there. Husband diagnosed in mid-Oct 2022 w/Stage 1, borderline resectable PC. Always looking for silver linings in life, so grateful found at Stage1. Been thru 5 rds of chemo but last two CA19 tests trended up with last one being at 1800. Doc now changing from 3 drugs to 2 and concerned that there is more cancer than what they have seen in CT, he also has increased pain in abdomen. But, he also has another issue in ab that needs attention, not related to cancer. First post here, anywhere as a matter of fact. Treatment is not at Mayo but we have a call in for a 2nd opinion at Mayo. Not sure what I am looking for as I type this.
Replies to "Hello there. Husband diagnosed in mid-Oct 2022 w/Stage 1, borderline resectable PC. Always looking for silver..."
You might also ask for a PET scan if not already completed.
Connect
Hi,
I am a stage 1b pancan patient. I had a distal pancreatectomy because of concerning cyst, and cancer found after resection. I have had 9 rounds of Folferinox and no CA-19 tests since post surgery, back in August. My case is different than your husband, but my doctor doesn't seem to think the CA test can provide 100% reliable info in mid-treatment, as I asked him once. I was on three chemo agents, but the Oxaliplatin was dropped, due to continuing neuropathy. Every case is different, even with some similarities. I don't know if any of my experience is helpful, but I think it's good to get second opinions from other docs. Best wishes.