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End-Stage Achalasia. Anyone been there?

Autoimmune Diseases | Last Active: Feb 2, 2023 | Replies (17)
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@pshack76

Teresa, Sorry I haven't posted in awhile. I had the upper endoscopy. It was pretty clear. My doctor still conferred with a colleague of hers at OHSU, who is also treats a lot of achalasia, but I'm clearly end stage and have only one realistic option. They've refereed me to one of their surgeons for an office visit. I'm not committed to an esophagectomy yet, but I realize I have no other realistic option.
The good news that the prognosis for this surgery for non-cancer patients is actually not bad. OHSU is more experienced at than I understood. They do more than anyone on the West Coast. Since I am an Oregon resident they are surely worth talking to. And I am young enough, 46, that I stand a good chance at withstanding this well and making it to the other side okay.
Even though I expected this it is overwhelming.

Philip

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Replies to "Teresa, Sorry I haven't posted in awhile. I had the upper endoscopy. It was pretty clear...."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 2, 2023

So good to hear from you again, @pshack76. It is good to know what your option is and to know that you would be seen at one of the best medical facilities in the area. Finding a hospital system with experience is so very important. You've certainly done your due diligence in this matter.

I'm looking forward to you continuing to post and keep me updated on your decisions. It certainly would be a major surgery, but it sounds as if your age and general health put you in good standing for a successful outcome.

Will you continue to post with updates and /or questions?

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