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I have had chronic, cyclical digestive issues for over 15yrs.
THE CYCLE: No, or minimal BM's for 2-10days. Over that time frame I get increased bloating, severe painful gas, nausea and feeling full after a few bites. Without warning, I will get an extremely urgent need to have a BM, along with aching joints in wrists, knees etc. (So urgent, I have had an accident 2x) With this urgency, I will have severe abdominal pains and while having a BM, I will repeatedly vomit at the same time. (I have bowls in all my bathrooms for this) This will go on for 20mins - 60mins of BM/vomiting/pain, aside from shakiness and weakness, the symptoms are relieved, but the cycle starts all over again.
I go copious amounts of looser stool. Never hard stool, even though I have not gone to the bathroom for 3-10days. Its truly like there is a kink in a hose and everything backs up behind the kink until it gets too much. When it "gets too much"(I never know when this will occur) and I have become increasingly more uncomfortable, bloated and have such horrible gas I can't stand up straight. This "purging" vomiting/loose stool at the same time, can go on for a few days, depending on the length of time since I have gone, or simply be a one time, violent "purge" episode.
This has been getting increasingly worse as I get older. I am a 53 yr old female.
TESTS: Swallow Study, LES not working correctly, sliding hiatal hernia, endoscopies with some inflammatory lesions (no obvious cause) Stool samples show chronic inflammation indicators in the stool, low potassium, and chronic anemia and intermittent high blood protein. Colonoscopies show nothing horribly obvious. I swallowed a camera capsule and it was determined that I had very rapid movement through the small intestines, some inflamed lesions through out intestines, but no diagnosis. I do get very thirsty and drink about 70oz of water a day. There are no food triggers that we can find.
Does anyone have similar issues? A doctor that I should see to help with this? I am desperate. I would love any help you may have.
Doctors are stumped and I am getting increasingly more depressed as I feel more and more sick. There is no relief.
Medications: NEXIUM
LEXAPRO
TRAZADONE
I get
Replies to "I have had chronic, cyclical digestive issues for over 15yrs. THE CYCLE: No, or minimal BM's..."
Thank you so much. It has been getting increasingly more difficult to endure. I am trying to find a doctor through Mayo clinic but have no idea where to start. I tried filling out the information on line for Mayo Clinic GI Consultants, but every time I submitted it says "Your submission could not be completed at this time, try again later". I tried two times and got the same error message.
I live in Seattle and have some great GI Doctors, but their knowledge is exhausted.
I tried to get into Mayo but they didn’t accept me. Why? I have no idea. Been diagnosed with POTS in August 2022. Have lost 26 lbs(weigh 97 lbs now, 2 endoscopies, 2 colonoscopies, Ct’s, MRA, MRI, 3 GI’s, 2 pain doctors, 4 ER visits, Gallbladder removed, enlarged parathyroid removed, seen allergist, urologist, PCP, 2 general surgeons seen for opinion, etc….more meds than you can imagine, delayed gastric emptying test, pill camera swallow. No-one can diagnose my severe upper abdominal pain, gas, bloating, severe nausea 60 percent of the time. It hurts so badly if I eat I now have food aversion. Have had 2 different nerve blocks, Ketamine injection How sick do you have to be to be able to see a Dr at the Mayo Clinic. I am malnourished and dehydrated. The dehydration was even noted on my MRI results. My PCP says he no longer has hospital privileges, GI Drs all said they have never admitted anyone to the hospital or requested home health for dehydration or malnourishment. UTSW is scheduling appointments 13 months out. I won’t be alive in 13 months. I have been pretty much bedridden since January 2022.
This is serious suggestion:start changing, checking filters in refrigerator, in your Keurig, whatever. I was horrified ti see the filter I pulled out of the Keurig thus morning. Is it holding high enough water temperature? Items to check off of box. I feel for you!
The doctors have looked for that. Thanks for reaching out! I think it’s going to be something unusual.
@ilean
I was going to suggest same idea as @lasirvlasirvent did.
Median Arcuate Ligament Syndrome -MALS
This can cause celiac artery compression, resulting in similar pain, nausea and weight loss as you describe.
I have gone through that- extreme pain with eating, nausea, lack of appetite, bloating, feeling full after one bite etc.
Diagnosed with abdominal Doppler ultrasound and/ or CT Angiogram.
You said they already checked for that but I would ask them to look again at the arteries serving stomach, intestines and the other organs. Can’t hurt to do it again.
Have Drs. Checked for gastroparesis or for your bowel endometriosis?
Thanks for the recommendations. I just saw my new GI for the first time last week. I am going to mail him all the scans on a disk
They have checked for gastroperesis but I have never heard of bowel endometriosis!
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Hi (@julsnealey) -
I am so sorry to hear about your medical condition. Have you seen a Mayo GI doctor? I have found them to be excellent at diagnosing Medical conditions. I am not a healthcare provider but have had GI issues for more than 10 years and they have helped immensely. I do hope you find some relief soon. Wishing you good health.
Annabelle