@iamrare2, I noticed that you wished to post links to helpful websites with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the links you wanted to post are not spam. Please allow me to post them for you.
https://www.futuremedicine.com/doi/10.2217/frd-2020-0004 https://www.genome.gov/Genetic-Disorders/Dercum-Disease https://www.fatdisorders.org/ http://www.lipomadoc.org/dercums-disease.html