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Newly diagnosed - neuroendocrine tumor in intestines

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (45)
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@peggymariejackson

I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET for I found info that Cosentyx causes NET,By looking over my meds I take more than Cosentyx with secukinumab in it.It is a biologic drug I have reached out to my doctor and the FDA both say it is not researche with causing it.I am so wishy washy about taking it,It helps alot because mine gets so bad that I cant move plus fibro.Just a mess.My Dr Enzler he is really good so I am sure he knows what he is doing.Just wonder because so many people have treatment.I feel better knowing someone is out there.I do have the flushing and diahrrea and have been having it for been years always said it was IBS.I get nausea alot.It hard to say for I am insulin dependent for diabetes.I live in the upper peninsula the care is not good at all.I wish you luck

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Replies to "I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 2, 2023

Hello @peggymariejackson,

I appreciate your response. It is confusing to try and figure out the reasons for NETs, isn't it? You mentioned that you have had diarrhea and flushing. These can be symptoms of carcinoid syndrome and there are monthly injections to help with those symptoms if carcinoid syndrome is the culprit.

Have you mentioned these symptoms to your U of M oncologist?

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