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Anyone have experience with gastrointestinal stromal tumor (GIST)?

Sarcoma | Last Active: Nov 12 8:53pm | Replies (77)
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@mwebste1

My GIST was found because I ordered a private blood test, looking for athletic information. My GGT was high so they did an endoscopy and found a golf ball size tumor. I had surgery 6/1/22 and had no other treatment. This week I had a CT scan and there is no sign of recurrence. I'm feeling great and very lucky!

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Replies to "My GIST was found because I ordered a private blood test, looking for athletic information. My..."
mikemancini | @mikemancini | Feb 5, 2023

What was the name of the blood test that found the elevated GGT please?

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Tom Anderson | @ta52 | Feb 6, 2023

We're on the same track! I have had no recurrence in 1 1/2 years but I still have scans every three months. They do have a tendency to come back but with regular scans we will be way ahead of the game.

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