← Return to Husband With Slow Cognitive Decline: So sad & confused

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@bonnie48

Dear Jean7ma,
Your story sounds so much like mine. And as I read the other responses to you, it’s clear that many of us can tell a similar story. I too wanted a clear diagnosis, much more than my partner did. Centre has a good point about having a baseline. It helps to mark changes later. My caution is to realize that neuropsych doctors can make mistakes, or dementia can change suddenly. Our first one told us that Ron absolutely did not have Alzheimer’s because of certain test results & comments Ron made in conversations. Well. six months later Ron had a special MRI & a spinal test & a memory researcher at our state’s university confirmed the diagnosis of Alzheimer Disease.Two years later, Ron has declined further & is refusing any more testing or therapy. It’s too discouraging for him. And I understand better so I won’t press for more testing. Dementia seems to be an uneven road with lots of curves & turns & stop signs. I wish you well in making decisions at each curve or sign. I hope you find at least one good doctor who can help you navigate your path.

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Replies to "Dear Jean7ma, Your story sounds so much like mine. And as I read the other responses..."

Hi Bonnie - I agree that an earlier diagnosis could well have changed by now. I keep thinking that things can be improved with enough exercise and a brain-centered diet. I know it's not a cure but I hope that we could stave things off for as long as possible. Have you or anyone else here had any good results with exercise? Again, we are 11 years in and I don't feel he'd be diagnosed with dementia at this point. But I'm not being naive - I knows things could change quickly. Then I lay awake at night worrying about the financial part of this and what will happen to me financially if it got to the point that he couldn't stay at home. I just want to wake up from this whole nightmare and have the retirement we planned. ...I apologize, I'm feeling sorry for myself. Thank you for responding, I appreciate your input. -Jean