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Anyone have neuroendocrine tumor (NETs) of the breast?

Neuroendocrine Tumors (NETs) | Last Active: Jan 6 3:30pm | Replies (48)
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@sldavis66

Neuroendocrine metastasis to breast
My primary tumor was found in my intestines two years ago. I had a hemicolectomy and 4/5 lymph nodes showed metastasis. Last week I had a lump removed from my right breast and pathology showed that it is neuroendocrine. I’m wondering if anyone else has experienced this. I’m looking for a doctor who has dealt with this before as well as information around what other people did for next steps.

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Replies to "Neuroendocrine metastasis to breast My primary tumor was found in my intestines two years ago. I..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 1, 2023

Hello @sldavis66 and welcome to the NETs discussion group on Mayo Connect. I moved your post to an existing discussion on NETs in the breast. This way you can meet with others like @trixie1313 and @mir123 who also have been diagnosed with NETs in the breast so that they can join in sharing their experiences with you.

Were you seeing a NET specialist for your previous NETs? What treatments have been suggested for this breast NET?

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