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pavlina60 (@pavlina60)

Recently diagnosed with PNET Grade2

Neuroendocrine Tumors (NETs) | Last Active: May 9, 2023 | Replies (9)

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@mwhitejasp

My husband went in for heart valve surgery and the surgeon accidentally found 5cm NET on tip of his pancreas. A PET scan revealed multiple lymph nodes affected. It’s been a long wait since October and we are anxious to get the NET out in a few weeks. The surgeon at Cedars Sinai will perform surgery verses a biopsy first due to the size of the tumor. It’s been extremely stressful having to face this just after my husband lost his sister-in-law to pancreatic cancer in September. We are thankful he was diagnosed before it metastasized into other organs. Now that his heart has healed we are now faced with another challenge. I’m comforted knowing others are facing similar challenges. We don’t know if chemo will be prescribed after surgery.

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Replies to "My husband went in for heart valve surgery and the surgeon accidentally found 5cm NET on..."

@mwhitejasp, I can only imagine how stressful this is for you and your husband. But I'm glad that it was found and that it is operable and that there is no metastatsis.

When is the surgery? How is he doing? How are YOU doing?