Is anybody dealing with an angiosarcoma?

Posted by amyqueenof4 @amyqueenof4, Sep 4, 2022

Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.

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Thank you for your responses,

I am Chuck Park. 78 hrs old. Diagnosed with angiosarcoma cancer in scalp 7-27-22. Removed surgically 8-15-22. Pathology report showed cancer removed completely with close margins. As a precaution did re-excision with wider margins 8-29-22. I have been receiving treatment at the VA Loma Linda, California. The Cancer Board at VA recommend I do radiation treatments. I have not seen an oncologist. I am working on getting an appointment through my primary care VA doctor.

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@chuckp

Thank you for your responses,

I am Chuck Park. 78 hrs old. Diagnosed with angiosarcoma cancer in scalp 7-27-22. Removed surgically 8-15-22. Pathology report showed cancer removed completely with close margins. As a precaution did re-excision with wider margins 8-29-22. I have been receiving treatment at the VA Loma Linda, California. The Cancer Board at VA recommend I do radiation treatments. I have not seen an oncologist. I am working on getting an appointment through my primary care VA doctor.

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@chuckp, when will you start radiation?

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@mermaid7272

I had angiosarcoma about 10-12 years ago, and was in my upper chest wall . It is, as you probably have learned,
a cancer of the lining of a blood vessel. And extremely rare. Men who have worked in the manufacturing of certain types of plastic are prone to get it. (I am neither!) There are other causes, & I suggest you research it with Google.
Mine started as a very odd-colored bruise that did not hurt, it disappeared, then reappeared in the same place. My dr. said it was nothing, but I insisted she biopsy it. She finally did, and when results came back, said she had never heard of it! I got a new dr.!
I had surgery to remove it, & had no more trouble with that particular cancer. I am one of the fortunate ones. Good luck with your friend, and learn as much about it as you can.

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I also developed mine after breast cancer. My doctor spotted it right away. Had it removed last year . Have Cat Scan every three month since. Clean so far except for a large kidney stone I had to have removed. He believes mine is from all the radiation I had after two procedures for my breast cancer. Have had a total mastectomy after he found it.

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@twinsisty1

I also developed mine after breast cancer. My doctor spotted it right away. Had it removed last year . Have Cat Scan every three month since. Clean so far except for a large kidney stone I had to have removed. He believes mine is from all the radiation I had after two procedures for my breast cancer. Have had a total mastectomy after he found it.

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Mine was not in breast, it was near my clavical (?) bone.
It was removed by surgery, no other treatment. But............... I have had numerous medical problems after, including many cancers. Several sarcomas & a second melanoma, pancreatis,
and assorted ills.
Hope we both will be healthy & happy & lucky!

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@mermaid7272

Mine was not in breast, it was near my clavical (?) bone.
It was removed by surgery, no other treatment. But............... I have had numerous medical problems after, including many cancers. Several sarcomas & a second melanoma, pancreatis,
and assorted ills.
Hope we both will be healthy & happy & lucky!

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Yes, for sure!

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Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

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@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

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Does anyone have/or had lung Angiosarcoma. Looking for treatments you may have had. Surgery? Successes, trials?

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@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

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@posi9, welcome.
I'm sorry to hear that the angiosarcoma of the breast has metastasized to your lungs. You ask what treatments people have had for metastatic angiosarcoma. May I ask what treatments have been suggested for you?

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In reply to @twinsisty1 "Yes, for sure!" + (show)
@twinsisty1

Yes, for sure!

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Mermaid, I also had a melanoma after surgery. Still doing well now. Scan every three months, hopefully will be every six if I’m clean after my next scan.

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@posi9

Recent devastating diagnosis. My angiosarcoma in breast has metastasized to lungs but not sure if it’s from the original breast cancer or from the angiosarcoma. Waiting for a biopsy. Wonder if anyone has had experience with this and what treatments were used. My best bet is it the original breast cancer, 🤞🏽. Has surgery been an option. Desperately seeking input. Tks in advance

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I was diagnosed in dec Angiosarcoma in the breast had a mastectomy Jan 26 then was told I stil have more cancer cells so I have to go back in for another surgery feb 9 to remove a margin in breast

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