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DiscussionLanreotide Manufacturers: anyone have experience with either?
Neuroendocrine Tumors (NETs) | Last Active: Mar 18, 2023 | Replies (53)Comment receiving replies
Replies to "I was diagnosed with Carcinoid in 2007. The mass had grown around several loops of my..."
Hi,
My dr has recommended the PRRT treatments. Did you have any side effects from the PRRT?
Thank you!
Hello @kellysg and welcome to the NETs discussion group on Mayo Clinic Connect. I appreciate your comments about your journey with NETs and the treatments that you have tried. It sounds like you have been proactive in trying different treatments and keep seeking answers.
I'm sure you are glad that everything has stayed "stable" and nothing new has shown up.
I see that your Chromogranin A (CgA) is higher than usual. As you probably know there are many reasons for this phenomenon. Is your doctor concerned about the rise in CgA levels?