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Anyone experience Radiation Fibrosis? What helps?

Breast Cancer | Last Active: Oct 7, 2023 | Replies (19)

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@ellenholm

I saw my medical oncologist today, for my regular 3 month visit, and she referred me to a physical therapist who specializes in lymphoma to address my hand swelling and also my aching body. She wants me to stay on the hormone drug, anastrozole, which is fine with me if side effects stay manageable. That was her only suggestion. She also said radiation fibrosis was rare with six week radiation treatment; but feels there is an uptick with three week treatments (stronger dose?). Time will tell as I am thinking (right or wrong) that three week treatments are relatively new.

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@ellenholm
You might also check with your oncologist about switching aromatase inhibitor. I was started on anastrozole and could barely get up to walk, the pains was so significant. From there I was switched to letrozole and still had problems, and finally switched to exemestane and have been doing well with that. I walk daily for exercise. As far as the hand swelling, it could be a type of lymphedema known as axial webbing which can be helped by a physical therapist who knows about lymphedema and lymph massage. I have had repeat bouts of this following surgeries and radiation and that helps considerably as well as using a "swell spot" which the PT ordered for me. It's used under your bra and helps break down fibrosis in breasts from radiation and softens the area. All the beset to you.