Anyone diagnosed with Gastroparesis?

@cherip, I can relate! Don't give up hope yet, though, like I did for a while.

Mayo's support groups have been tremendously helpful. Sometimes there can be a delay in getting answers to questions but I have found people in these threads to be very supportive and helpful, quite willing to share ideas and strategies. This forum has listed several GP nutrition resources, including Mayo itself and Crystal Saltrelli, which I have found to be helpful in addition to what fellow GPers have shared.

Also, I've been fortunate enough to already have a brilliant PCP who probably knows as much about my diabetes as would an endocrinologist and is expert in pharmacology (many docs aren't) as well as well-versed in nutrition. An added bonus is my nephrologist who not only helps me manage renal disease but also knows about nutrition.

I finally am managing some soft solids after over a year of yukkiness both before and after meals (liquid or not) and lousy nutritional status as a result, causing extreme fatigue and low stamina and continued weakness. It has taken me awhile to finally accept that I cannot tolerate anything beyond liquid & soft, at least for now, and for the past three or four months I've been doing much better despite there still being yukky days. I now realize that there are going to be days when I must rest my GI system no matter how tired that makes me and unless the GP "flare" diet goes on too long there is less nutritional and physiological risk to that as there is to throwing up all the time and other not-fun symptoms.

I hope you can find a doc or PA or NP who can help you even it GP isn't that person's specialty.

And you are always welcome here! Sending you positive vibes!

The Pyloroplasty has relieved my constant cramping. I suffered for over 3 years.
Has relieved my constipation also. I am eating more foods now. I can eat before going to bed. I have not had meats or raw veggies or fruits. I will see a new Gastroenterologist on Feb 13 who was recommended by my surgeon to lead me along the path to adding foods. I was on liquids for weeks following the surgical procedure. The relief from my constant pain has just given me a new life!!

I very much recommend you find a surgeon to do the Pyloroplasty procedure.
I had cramped for 3-1/2 years and anything I ate made me cramp. I was on liquids for quite a while following the procedure but the surgeon told me it would take a full 3 months to see all the benefits of the procedure. I am so glad I had it. It is an entire new life.
I am seeing a Gastroenterologist on Feb 13 recommended by my surgeon who will lead me into eating more foods. I haven’t eaten meats or raw veggies or fruit yet except for banana. I am no longer sugar free, dairy free or gluten free. I have been able to get up and do my housework and to go to church. I am so thankful that I had this procedure done!!

After my Pyloroplasty I was really sore for the 1st two weeks. The surgeon put me on liquids for 3 weeks. I get better every day. Prior to the surgery I was in bed for days at a time cramping so badly and had severe constipation.
Now I am eating soft foods but the main thing is I am no longer in pain!!!! The surgeon said I would continue to improve over 3 month period.
I feel so much better. I have no problem eating before I go to bed. He has referred me to a Gastroenterologist to guide me into eating more foods.

THANK YOU for the update Brenda. I might consider having Botox injected first when I have my next EGD which would "simulate/have similar effect " to the pyloroplasty- and if things improve with that then I would move forward with the pyloroplasty which is obviously a more permanent "fix".

My daughter is suffereing from GP, probably brought on by Covid according to the surgeon. She had botox and it seemed to help, so they did the G-POEM but it is not better, seems worse! Anyone have success with Motegrity, or the gut motility supplements - with Ginger and Artichoke? We are also trying Accupuncutre, hasn't helped yet. Any other ideas? I am trying to talk GI doc into trying Motegrity, but they seem as slow as her gut to do much of anything.
Frustrated Mom !!

7 years ago I had a Nissen Surgery to reduce GERD.. something went terribly wrong.. the local surgeon and GI person couldn't figure it out for nearly 2 months as I lost 50 pounds.. I went to Mayo Minnesota..they figured it out in a day with 3 tests.. "post operative gastropanesis".. nerves that surround the stomach were injured.. they do not regenerate.. surgery cannot be undone... so every meal is a challenge.. Go get other competent help..

I tried Motegrity and it made me worse!
On Nov 1 I had a Pyloroplasty by a surgeon in Louisville, Ky.
I feel like a different person!
Such pain relief.
I do still watch what I eat and take 2 tablespoons of the mixture of 1 cup applesauce
1 cup oat bran ( not oat meal!)
3/4 cup prune juice.
I mix this in a bowel and keep in refrigerator.

Ken82,
So sorry to hear of your medical challenges but am glad that Mayo was able to help. I find that they are the best at diagnosing complex medical conditions. They are several posts about what people who have gastroparesis find to eat srarch for gastroparesis). I hope you can find things that you can eat that give you a little joy. I am not a healthcare provider but have had GI issues for more than a decade. Wishing you good health.
Annabelle

I had the same surgery March of this year. The surgeon damaged my vagus nerve and I’m left with gastroparesis. A day hasn’t gone by that I feel well. Plus, I have blow out diarrhea all the time. I’m at my wits end.