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Newly diagnosed - neuroendocrine tumor in intestines

Neuroendocrine Tumors (NETs) | Last Active: Feb 5, 2023 | Replies (44)
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@peggymariejackson

I was diagnosed in 2021 of a NET in my stomach,Every 6 months to a year I have EGD done and Catscans and labs.I have had to have a EGD done they always fine polphs and almost everytime they come out as NET.
They scan to make sure it hasen't spread.I have not had any treatment just removing them.I have a good doctor at the University of Michigan Oncologist,He told me these type of cancer is not life threating and they do have an injection to help it from spreading .I am still scared I have alot of cancer in ancestory and siblings.My mom died from anal rectal cancer.They found my NET originally in Jume 2021 which was a EGD.I recently went on 1/5/2023 and they found 2 NET again.I have had at least 7 hemoclips all are gone except 3.I read a certain types of medications with the ingredients of secukinumab please give me feedback

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Replies to "I was diagnosed in 2021 of a NET in my stomach,Every 6 months to a year..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 1, 2023

Hello @peggymariejackson and welcome to the NETs discussion group at Mayo Connect. Given your family history of cancer, I can certainly understand your concern about your own NETs history. I have also had three surgeries for NETs in the upper digestive tract and like you, I also go to The University of Michigan. I have had no other treatment, however, just the surgeries.

Have you had any symptoms of carcinoid syndrome such as facial flushing, diarrhea, etc.?

You mentioned a medication with the ingredient of "secukinumab." Was this recommended by your oncologist or is it to treat another health condition?

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