I was diagnosed with NETs last year. My case is a bit unusual since it seems to be only on the liver. They are still unable to find the origin. They started me on Lanreotide a somatostatin. It worked for a few months but then my CgA were elevated again for three months in a row. My flushing has gotten worse and the pressure I feel in my head from the flushing seems to linger for several minutes. I do scans every three months. My previous scans before my CgA levels were high turned out stable. I'm curious to see if there are any changes in the next scan.

Jump to this post