I was diagnosed with NETs last year. My case is a bit unusual since it seems to be only on the liver. They are still unable to find the origin. They started me on Lanreotide a somatostatin. It worked for a few months but then my CgA were elevated again for three months in a row. My flushing has gotten worse and the pressure I feel in my head from the flushing seems to linger for several minutes. I do scans every three months. My previous scans before my CgA levels were high turned out stable. I'm curious to see if there are any changes in the next scan.