1. < Neuroendocrine Tumors (NETs)

Neck and face red flushing

Posted by elkeann @elkeann, Jan 26, 2023

Hi, i am new here. I was just diagnosed with NET in December 2022. I am curious why my neck and face get flushed and my Dr consistently will ask me about it? What does it mean?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

elkeann | @elkeann | Jan 30, 2023

Here are the foods to avoid...
REPLY
dbamos1945 | @dbamos1945 | Jan 30, 2023
In reply to @elkeann "I found this page on another NET group I am in. I hope it helps." + (show)
@elkeann

I found this page on another NET group I am in. I hope it helps.

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Thank you much for specific foods to include in NET diet that will not encourage Seratonin hormone production.
You have been very helpful! Big hug…

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dbamos1945 | @dbamos1945 | Jan 30, 2023

Thank you for sharing this specific diet. Hug

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dbamos1945 | @dbamos1945 | Jan 30, 2023
In reply to @elkeann "I found this page on another NET group I am in. I hope it helps." + (show)
@elkeann

I found this page on another NET group I am in. I hope it helps.

Jump to this post

Thank you for sharing elkeann!
Hugs…

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osiejay26 | @osiejay26 | Jan 31, 2023

Flushing is the most annoying symptom. I get them several times a day. It's uncomfortable and sometimes embarrassing when you're interacting with people. My flushing has gotten worse even with treatment and my head feels like it's going to explode.

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tennisfan | @tennisfan | Jan 31, 2023
In reply to @tennisfan "The symptoms are common although some, such as myself can be a symptomatic. It is a..." + (show)
@tennisfan

The symptoms are common although some, such as myself can be a symptomatic. It is a sign that the tumor/tumors are active. The tumors release a hormone called serotonin which in excess causes the symptoms.
There are certain dietary things that set off the symptoms as well. Ask the dietitian for a list of what to avoid. Best of luck.

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If you go to webMd and search under Carcinoid foods to avoid there is a list. Better option is a hospital nutritionist.

On the medication side I’m no help. Ask your primary care doctor or better yet, your oncologist

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 31, 2023
In reply to @elkeann "This is all very new to me. I was just diagnosed in December 2022. I have..." + (show)
@elkeann

This is all very new to me. I was just diagnosed in December 2022. I have had 1 injection of the Octeriotide. My facial flushing seems to be getting worse. Or maybe it is that I am just noticing more often. I go for my Dotatate scan on February 1st to see where all my NET is located. So far it is just on my liver, which came back from my 2 biopsies, and Octeriotide Scan.

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It is good that you have a scan coming up, @elkeann. I hope that gives your medical team some more information about your NETs.

I look forward to hearing from you again. Will you post with an update?

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