← Return to Anyone tried Spinal Cord Stimulation for Chronic Pain?

Discussion

Anyone tried Spinal Cord Stimulation for Chronic Pain?

Neuropathy | Last Active: Jan 31 9:35pm | Replies (410)

Comment receiving replies
@msgrstclair

My chronic pain doctor recommended the SCS for me as he has been treating me for years and my pain was still increasing. We tried the Nevro SCS trial with tremendous results. It stopped about 95% of my pain. So he recommend I go ahead with the permanent implantation. The Nevro rep said it was awesome that it helped with that much of the pain and even seemed to help with my Stiff Person Syndrome attacks. They said they should be able to replicate the trial with no problem. I asked to see the permanent devices and asked how they would work. They told me I would have to recharge the device probably daily and it should start relieving my pain in about two weeks. They would not allow me to actually see the devices and show me how they worked together. After the implantation on December 28th 2022, they gave me my kit and I found out the designers had only put about an 18inch cable between the control device and the charging paddle, making it incredibly painful and sometimes fruitless to try to charge it. They also designed only a 10 second timeout for you to be able to line it up. I can't believe any idiot thought that would be adequate. I was a programmer/network engineer for over 30 years and unless I didn't really want someone to accomplish something, I would NEVER program only a 10 second timeout. Not only has it not helped decrease my chronic pain, I have more pain now from the implantation and from trying to use the ridiculous charging unit.
On top of those problems there is been absolute no ability to recreate the trial because Nevro says they have to go through their "try and repeat" program for everyone in the same way. That is also absolutely stupid. Why not exactly replicate the same program found to work in the trial since everything is supposedly controlled and recorded by their computers.
I'm tired of being lied to by this company.
I DO NOT RECOMMEND THE NEVRO UNIT.

Jump to this post


Replies to "My chronic pain doctor recommended the SCS for me as he has been treating me for..."

My spinal surgeon who implanted my Boston Scientific device told me that it would help alleviate pain but not the numbness/tingling sensations. I also had the trial and it seemed to help significantly with my Morton's neuroma pain allowing me to walk in shoes on a hard surface. When I had the permanent unit implanted, it did not perform the same and has been a disappointment after trying many different programs, I was warned about the Nerve device which is why I went with the Boston Scientific device.