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IV pamidronate and IV ibandronate

Bones, Joints & Muscles | Last Active: Feb 1, 2023 | Replies (5)

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@windyshores

I am in the same position @contentandwell. Though I will have only done 17 months of Tymlos. Would you mind sharing you GFR for kidney function? You could do it privately if you prefer. Mine is 53. Third stage kidney failure is 30-59. Wondering whether that is also too low for Reclast.

Have you considered following up with Evenity? Also the time limit has been lifted for Forteo, I believe- but not Tymlos yet.

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Replies to "I am in the same position @contentandwell. Though I will have only done 17 months of..."

@windyshores My EGFR is 49. Over the last 6 months it has ranged from 45 to 55. I am post-transplant (liver) so my transplant team keeps a very watchful eye on me, lab work every two months, etc.

Evenity has some side effects that indicate heart problems and/or stroke. I personally have not had heart problems that I am aware of but I do have an appointment with a cardiologist coming up in April to get some answers and if needed, to be proactive. Literally everyone in my family except for two people has died from heart problems (that's at least 13 people) so it's in my genes and that makes me very leery to take Evenity.

I had no problems with Tymlos initially but over time my legs started to ache constantly and I don't want to have to deal with that again. I believe Tymlos has now also been approved for longer than two years.

I see my endo tomorrow so I am looking forward to hearing what she suggests for the next step. She thought my osteoporosis was probably related to my being on prednisone but I am no longer on prednisone so I want to ask her about that too. If I no longer take prednisone does that indicate that my osteoporosis will not get worse if I watch my diet and exercise?
JK

Could I ask why you are prescribed Pamidronate for your CKD?? I took this medicine 24 years ago for several years and I paid for it later and still having problems from it. I do have CKD and just about everything else also from taking medications yearss ago.