Hello @frenchmustard and welcome to the NETs discussion group. I appreciate you sharing your journey with our community. You ask some good questions. There are routine tests/scans that are usually done. An oncologist, who is a NET specialist, will most likely be aware of the follow up tests that need to be done on a regular basis.

Here is some information from the Carcinoid Cancer Foundation (CCF) listing some of those important tests that are used for diagnosis as well as follow-up,

--Diagnosis and Follow Up Tests - Carcinoid Cancer Foundation
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
Are you going to a research-oriented health care center? What type of follow up tests are being recommended by your oncologist?