I am so grateful for your response to my post,and the possible connection that we may have with our stories.I have been under chemotherapy since July,2022.I was receiving 5FU infusions biweekly combined with 5mg daily of everolimous,but we had to stop the everolimous about 3 months ago because of some reactions and the infusions are far more important.
I have had 2 scans to date,both showing disease control and some shrinkage.The most pressing issue along the way is managing and dealing with the sugar levels. I do wear a Dexcom system to try and manage day and night.Oddly they found adding cornstarch to any liquid,like tea helps the levels. I am not on injections(yet).I know the net combination with the insulinoma is rare,but I am encouraged to hear that you have been managing for some time!
For me having a connection is important and hope you might feel the same...hearing positive responses,encouraging news and developing treatments is great!
I live in the Boston area,not sure where you are located.
I am interested to hear more of your story and happy to share mine.
I look forward to hearing from you...wherever you are located,there is another strong supporter right here!!
My best
Marlene
Happy to share my number if you would like!