Ending Tamoxifen after 5 years!

Posted by sparklegram @sparklegram, Jan 29, 2023

Joyfully, today is my last day on AI's after 5 years. Has anyone had negative reactions after stopping Tamoxifen?

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I did not, but if I am being truthful I did not really notice a difference. The worst of my side effects, the hot flashes actually continue to this day. I do believe they have finally started to wane in number. I did continue with endocrine therapy after a respectable break of 6 months. I asked for this because I had hopes of cooling down. 😂😂
Has your doctor recommended any continued therapy? Did you have side effects from Tamoxifen?

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Hi @sparklegram I encourage you to do research on hormone-blocking long-term side effects. I took Arimidex for 10 years and still had a recurrence 14 years later, To answer your question no I don't recall any side effects after stopping. I was hoping that my hips and low back ache constantly would cease, but I'm sure the Neulasta played a part. I was ER PR positive both times. It's amazing how many hormones are in the food we eat. I personally wish I would not have taken the hormone blockers since they didn't stop the recurrence. Maybe, I would feel healthier now and not have to shave my fu man chu 🙂 I'm considering the Estrogen supplements to help with the Heat I still do have not hot flashes like they were but I sweat like a construction worker now.

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@bcwarrior

Hi @sparklegram I encourage you to do research on hormone-blocking long-term side effects. I took Arimidex for 10 years and still had a recurrence 14 years later, To answer your question no I don't recall any side effects after stopping. I was hoping that my hips and low back ache constantly would cease, but I'm sure the Neulasta played a part. I was ER PR positive both times. It's amazing how many hormones are in the food we eat. I personally wish I would not have taken the hormone blockers since they didn't stop the recurrence. Maybe, I would feel healthier now and not have to shave my fu man chu 🙂 I'm considering the Estrogen supplements to help with the Heat I still do have not hot flashes like they were but I sweat like a construction worker now.

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There are natural estrogen treatments that a lot of my friends take: DIM and Crysin.

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@bcwarrior

Hi @sparklegram I encourage you to do research on hormone-blocking long-term side effects. I took Arimidex for 10 years and still had a recurrence 14 years later, To answer your question no I don't recall any side effects after stopping. I was hoping that my hips and low back ache constantly would cease, but I'm sure the Neulasta played a part. I was ER PR positive both times. It's amazing how many hormones are in the food we eat. I personally wish I would not have taken the hormone blockers since they didn't stop the recurrence. Maybe, I would feel healthier now and not have to shave my fu man chu 🙂 I'm considering the Estrogen supplements to help with the Heat I still do have not hot flashes like they were but I sweat like a construction worker now.

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I'm curious which foods you found to have high hormones? I have always been curious about the greek yogurt I eat so much of.

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@bcwarrior

Hi @sparklegram I encourage you to do research on hormone-blocking long-term side effects. I took Arimidex for 10 years and still had a recurrence 14 years later, To answer your question no I don't recall any side effects after stopping. I was hoping that my hips and low back ache constantly would cease, but I'm sure the Neulasta played a part. I was ER PR positive both times. It's amazing how many hormones are in the food we eat. I personally wish I would not have taken the hormone blockers since they didn't stop the recurrence. Maybe, I would feel healthier now and not have to shave my fu man chu 🙂 I'm considering the Estrogen supplements to help with the Heat I still do have not hot flashes like they were but I sweat like a construction worker now.

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Hi bcwarrior that is just the reason I am not taking tamoxifen or any blocker
after radiation I have to many friends that took it for 5 years and it came back, I will get
checked every 6 months. I don't want to feel bad or have hot flashes and etc.

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@janisbrede

I'm curious which foods you found to have high hormones? I have always been curious about the greek yogurt I eat so much of.

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Dairy is a big one, they feed antibiotics and hormones to the cows. There has been a trend in recent years to provide hormone and antibiotic free dairy.
If you look online you can find out about your brand. I eat fage brand and I also know stoneyfield brand is non hormone and non antibiotic.
This practice is still very common in all types of commercial animal barns, chickens, pigs, cows etc., but there is headway into understanding how bad this is for humans.
Phytoestrogens in some plant based foods like soy are still being researched. I think the jury is still out in my mind. I say this because one study will say yep it’s bad for breast cancer patients, the next study will say it is not. I find most of these studies are funded or ran by someone having an interest in the outcome. I do take in a little soy but I don’t drink soy milk or eat tofu or eat a lot of processed foods.
After I have rambled on 😂 now I should ask, what brand of Greek yogurt you love?

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@bcwarrior

Hi @sparklegram I encourage you to do research on hormone-blocking long-term side effects. I took Arimidex for 10 years and still had a recurrence 14 years later, To answer your question no I don't recall any side effects after stopping. I was hoping that my hips and low back ache constantly would cease, but I'm sure the Neulasta played a part. I was ER PR positive both times. It's amazing how many hormones are in the food we eat. I personally wish I would not have taken the hormone blockers since they didn't stop the recurrence. Maybe, I would feel healthier now and not have to shave my fu man chu 🙂 I'm considering the Estrogen supplements to help with the Heat I still do have not hot flashes like they were but I sweat like a construction worker now.

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I just had surgery and will start treatment soon. I’m also thinking the same thing - not to take hormonal medicine which only delays the recurrence not to kill the cancer cells. I’m already osteoporosis. Really worried about the side effects.

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@auntieoakley

Dairy is a big one, they feed antibiotics and hormones to the cows. There has been a trend in recent years to provide hormone and antibiotic free dairy.
If you look online you can find out about your brand. I eat fage brand and I also know stoneyfield brand is non hormone and non antibiotic.
This practice is still very common in all types of commercial animal barns, chickens, pigs, cows etc., but there is headway into understanding how bad this is for humans.
Phytoestrogens in some plant based foods like soy are still being researched. I think the jury is still out in my mind. I say this because one study will say yep it’s bad for breast cancer patients, the next study will say it is not. I find most of these studies are funded or ran by someone having an interest in the outcome. I do take in a little soy but I don’t drink soy milk or eat tofu or eat a lot of processed foods.
After I have rambled on 😂 now I should ask, what brand of Greek yogurt you love?

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I think organic milk doesn’t have added hormones and biotics.

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Yay Sparkelgram! I’m thrilled for you!! Drop in occasionally and let us know how you’re doing! 💕

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@marcia115

Hi bcwarrior that is just the reason I am not taking tamoxifen or any blocker
after radiation I have to many friends that took it for 5 years and it came back, I will get
checked every 6 months. I don't want to feel bad or have hot flashes and etc.

Jump to this post

Hi.. did you just have a lumpectomy or mastectomy.
I will be getting my biopsy report by Wednesday. I am 72 and I don't want to spend the rest of my life miserable.
My inclination is to have a double mastectomy.
I am just devastated by this. I feel fine and have no family history of breast cancer.
Thanks for listening...

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