Ihave Churg Strauss disease aka, Polyarteritis nodosa Eosinophilic granulomatosis w/polyangitis
I never linked the PMR with this until just now. I guess its all autoimmune related. I seem to have it all lately.
I live in a city that is in the northern most area of CA and still seems to be a area starved for doctors and specialists. They cannot be recruited to live here! So I am now looking at a commute to Portland where there is a vasculitis clinic. My rheuatologist here is closing his office and retireing! So I feel abandoned kind of. I am on Nucala injections x3 once a month and I'm not sure if I'm having any progress yet. I see my doctor in a few days but its the only time I would see him since I've been taking these injections, 3+months. I hope he can see some improvement in my blood work. One weird thing that has come from these injections is the bumps/lumps under my skin immediately after the first dose of Nucala within 14hours of injections my legs developed hundreds (too many to count) of these lumps. They are painful and some turn into red sores that are uber sensitive to any kind of touch as well as being itchy at times. My family doctor took a biopsy of two bumps that only showed they were made of fatty tissue and blood! Not any corelation to Vasculitis that they could see!? So still do not know what they are but it is most painful and with the neuropathy I already had in my feet it makes for countless sleepless nights. Nothing seems to relieve the pain but norco, which I am very cautions of. But when I am facing pain I simply cannot fight through I take 1/2 a pill and it helps. I cannot wait to see the doctor and share this all with him.