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About to start Prolia: What's your experience?

Osteoporosis & Bone Health | Last Active: Feb 27 10:57am | Replies (126)

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@contentandwell

Hi, @lpenny
I have just completed 23 months of Tymlos with good results but now I have to do a different drug to maintain my gains. I am really opposed to Prolia.

I discovered that I should not do Reclast because my kidney numbers are already borderline and Reclast could make them worse. I cannot do an oral bisphosphonate because I have Barrett's esophagus. So, I really have a dilemma here and am not sure which drug would be appropriate. I have an appointment with my endo on Wednesday that was quickly scheduled when I discovered that Reclast would not be appropriate.

Did you end up using a different osteoporosis drug, and if so which are you using? I really do not want to lose my gains.

It just seems as if there are no osteoporosis drugs that are not problematic.
JK

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Replies to "Hi, @lpenny I have just completed 23 months of Tymlos with good results but now I..."

Hi @ contentandwell, it’s good to hear that you had success with Tymlos and having to make a decision on what new drug to take
is I’m sure frustrating. You mentioned that you have a few health issues and that will make your new decision more difficult I’m sure. Hopefully your endo was able to help you.

To answer your question regarding my taking a new drug : I do not have an appointment until the end of this month. I am not going to take Prolia because of the side effects I had and still have that I consider serious. I have been doing much researching about possibly taking the holistic route.
I just ordered some books regarding osteoporosis and possibly with diet, vitamins and exercise it will keep me going until I decide what decision I will make. I know my rheumatologist is not going to be happy with me but I need to be my own advocate.

You had success with Tymlos and possibly you will be able to tolerate Prolia. Good luck and let us know what decision you made. Keep us posted.