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@contentandwell

Hi, @kicker113640 Welcome to Connect.

Do you wear hearing aids? I have tinnitus and during the day, when I am wearing my hearing aids, I don't notice the tinnitus but at night when I take them off and go to bed I really do unless I am active with something like reading before settling down to sleep.

I believe that my situation is pretty common, that people with hearing aids do not notice their tinnitus when they are wearing their hearing aids because they are hearing other external sounds whereas after removing the HAs things are very quiet.

The sound I hear is like a motor running so when it first started it would alarm me that something in the house was running and I would tell my husband. He would get out of bed and go around the house to find the noise but there was never anything. Eventually, I realized it was tinnitus. I guess I thought tinnitus was a ringing sound and mine is definitely not.

It is a nuisance but if yours is similar to mine you will eventually learn to just live with it. I will be curious to hear what your doctor says about it.
JK

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Replies to "Hi, @kicker113640 Welcome to Connect. Do you wear hearing aids? I have tinnitus and during the..."

At least for me it has been the case that as my hearing loss becomes more profound my tinnitus is noticeable and bothersome whether I have my HA in or not, since I’m no longer very much in touch with environmental sounds. I have also now begun having repetitive musical auditory hallucinations, which I concluded is my brain trying to supply sound as I lose more and more ability to hear the sounds I used to hear all the time. At a recent visit my audiologist confirmed that that is indeed what my brain is trying to do. She has programmed several different subtle sound choices into my HA phone app for me to choose from when I need to lure my brain into listening so that it doesn’t have to create musical noise for itself.

The combination of tinnitus and auditory hallucinations has been upsetting and frightening to me, but I am finding myself comforted by an appreciation of my brain’s remarkable creative efforts to take care of its needs on its own without any conscious assistance. My audiologist assures me this is not mental illness or dementia, which of course are frightening to all of us, just the brain reacting to too much silence where there used to be a rich sound environment.