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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@erincorn

@aah you are not imposing at all. There was no need to see him in person. By the time I found him, I had experienced 3 ER visits where tons of tests were run (bloodwork, CT scans, etc.), all of which he had access to. He then ordered additional blood tests. He is very comfortable treating me from a distance because there isn't really anything different he would do in person. I trust him implicitly and feel very fortunate he agreed to take my case. I can actually communicate with him via the Mayo patient portal, which is much faster than trying to get an in-person appointment. For instance, after my last CT scan a month ago here in Scottsdale at 6:30pm, I had the results and his report before I even woke up the next day because of the time difference. I am a runner and a month or so ago, as I ramped up my mileage training for a half marathon, I started getting nauseous around mile 3 every single time. He responded the same day with my questions, we adjusted my meds and now I am so much better while running.

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Replies to "@aah you are not imposing at all. There was no need to see him in person...."

Thank you so much for the info! I am trying to get a second opinion - my team of Dr's recommended I try w Mayo, Cleveland Clinic or John' Hopkins. I tried calling Mayo for info on telemed appt but they told me they were not taking new patients. Did your local doctor help you with referral? I am getting to my wits end .... also have ulcerative colitis, severe gastritis and gerd and have altered diet and managed symptoms fairly well for years but this MP has been very challenging. So glad you have the connection you do and help trying to manage MP.
Thank you so much for your info!