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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: Oct 11 2:53pm | Replies (108)

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@johnbishop

Hello @petlover777, Welcome to Connect. I wasn't able to find other members who have posted about esophageal lichen planus but hopefully your discussion will help bring in members to share their experience with you. While we wait I thought I would share this article which may help answer questions you might have.

"Esophageal lichen planus is a rarely reported manifestation of lichen planus, presenting itself commonly in middle-aged women, with symptoms such as dysphagia. "
-- Esophageal lichen planus: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4516088/.

Do you mind sharing what symptoms cause you the most trouble?

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Replies to "Hello @petlover777, Welcome to Connect. I wasn't able to find other members who have posted about..."

Hi petlover, I have ELP also. I was diagnosed in January. The most troubling symptom I have is my esophagus. My esophagus gets swollen at times which makes swallowing concerning. For example I have choked on bread. Sometimes when I swallow liquids it causes me to belch several times causing foam to come up. I will have to have my esophagus stretched. I have lesions on my legs, back, chest and in my mouth. It has gone into the tissue under a couple of my fingernails. It causes my fingernail to come off. There is not a doctor around here that has ever had a patient with ELP. Many of them don't know what it is. I appreciate knowing someone who has this rare disease!❤️