Hi Everyone,
I will post under "mmata". I am new to this forum that Mayo Clinic has consented to regarding a variety of topics. I'm so glad that a friend told me about the variety of groups offered.
I have had 8 spine surgeries at different levels of my spine. Unfortunately my spine continues to deteriorate in the Lumbar, the Thoracic and the Cervical levels of my spine. I also am bone on bone in both of my knees. They are both very painful and they buckle on me often causing me to fall or to barely be able to catch myself from falling. I have my second Spinal Cord Stimulator implanted in my spine, but even though it works, I can not tolerate its stimulation any longer as it seems to aggrevate my pain quite a bit. My former pain mgt doctor told me to leave it in my spine as I can't have anesthesia or surgery due to Carbon Dioxide Poisoning bouts where I almost went home to God on 3 separate occasions. That's why I can't have surgery on my knees too. In addition to all of this, I have developed severe Arachnoiditis all around my spine. My pain is so severe that I often pass out from the intensity of my pain. The terrible pain from various things causes me to not sleep much at all. I sleep each night anywhere from Zero to
1 - 1/2 hours of very broken sleep. I have to sleep in my recliner. I can't lay down at all due to my back situation and the resulting crazy pain. I am hoping to connect with others who have severe Arachnoiditis to learn from them what they do for their pain and what treatment they might be receiving. Thank you for letting me join the various groups. My prayers are with you all.
mmata