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@milld835

I was diagnosed with PMR in Jan. 2022 and put on 20 mgs. of Pred. It has been my experience that .5 (not 5) mg reduction at a time is more than enough. 5 mg. is too much and that's why you're experiencing the pain (again). I have not been offered methotrexate - yet. There is no race to the finish for tapering, go by what your body is telling you. Over the last few weeks I was down to 14 mg. but last weekend experienced much head pressure, jaw pain and some eye involvement and went to ER. After the resident spoke with the Rheumatologist on call, I was put up to 60 mg. Pred and now being tested for GCA (possible biopsy on Wednesday next, but since I've been on Prednisone for this long, it may not be a good result (not show much). I wish you well on this "journey", but slow down the tapering (lack of pain and quality of life also count). Know that you're not alone and keep in touch with this support group and also healthunlocked.com/PMRGCAuk (another extremely helpful support group).

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Replies to "I was diagnosed with PMR in Jan. 2022 and put on 20 mgs. of Pred. It..."

Thank you so very much for your comments! They're very helpful and truly appreciated.
I have a lot to learn on this journey.
I've noticed my family doctor isn't concerned about my symptoms as much now because my CRP went from high eighties to twenty. I've discovered you can't ignore symptoms though. Quality of life is important. I need to learn how to communicate my needs better. I haven't addressed many of the issues I have because it's very time consuming and they are more so related to Sjögren's. I also have symptoms of GCA but not enough to warrant action yet. I'm keeping a bit of a journal and note if something is problematic.
I will discuss the tapering of prednisone with my rheumatologist at my next appointment. I think your method would be far better for me.
I will look at the other group as well. It is helpful and encouraging to know others understand what I'm experiencing with PMR. I can't thank you enough for making the time and effort to respond to my post.