← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@victoriabirdie

After 6 weeks of begging for answers and 6 misdiagnoses, I was diagnosed with temporal Arteritis of the face, head and tongue. I was on 60 mg of prednisone but was bumped to 80 the last 5 days. Still have the headache, jaw pain and my tongue blows up sometimes when I eat. So my question is has anyone else been on this much prednisone? I weigh 135 so it seems extreme but I don’t want to lose vision or have a stroke, not to mention the pain. Was anyone put on methotrexate or actemya for this monster disease? Has it helped?

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Replies to "After 6 weeks of begging for answers and 6 misdiagnoses, I was diagnosed with temporal Arteritis..."

When I was diagnosed with GCA in 2020 I was put on 80 mg of Prednisone because I was beginning to have eye problems. It helped immediately. About 6 months later I tried both Methotrexate and Actemra. I could not tolerate the side effects.