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HPV Throat Cancer

Head & Neck Cancer | Last Active: May 8, 2023 | Replies (22)

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@donnarebar

Hello
My dad was diagnosed with throat cancer last August. He went through 35 rounds radiation treatments and 2 rounds of Chemo
He is cancer free BUT he can NOT swallow now. He was just put on a feeding tube as he was starving. Does anyone else have this issue? What can he do? He can eat crunchy cookies only. PLEASE if anyone went through this or has any recommendations please advise. Thank you

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Replies to "Hello My dad was diagnosed with throat cancer last August. He went through 35 rounds radiation..."

I've had chronic throat cancer since Jan 2019 and underwent 35 doses of proton beam radiation at Mayo Rochester and had 6 doses of chemo. It was hard. Sounds similar to your dad. I was 63. They put a feeding tube in me 3 weeks into treatment. i wish i had it done at the outset. My tumor was on my epiglottis and the radiation fused my esophagus so i could not swallow for a long time. After 15 months on a feeding tube it was removed. That was one of the happiest days of my life. It was not the inability to eat-I had plenty of nutrition through the feeding tube but the loss of socialization via food and drink was almost impossible to bear for me.
There was some great rewards-I lost almost 100 lbs., I stopped drinking alcohol for a long period and most important i realized if I got through this I could probably get through anything. It gave me inner strength.

My esophagus is still very narrow. I need to crush pills and swallow them with moist foods. I can't eat very dry or large foods-e.g. beef, however, i don't focus on what I cant eat only on what I can eat and I'm grateful for that. I eat more slowly and smaller portions which keeps me healthy. the adjustment is worth it for sure. I prefer to focus on my abilities not my inabilities and am grateful for that.

@donnarebar, how is your father doing with the feeding tube?

Very interesting he can eat crunchy cookies. I still have a hard time with anything crunchy, dry, have salt/sugar/sugar substitute. I had swallowing issues after my treatments. I saw Speech Therapy that gave me exercises to do to stretch and strengthen the tongue and muscles of the face and neck. I had a fairly good result. But I do eat with much smaller portions. Chew very well, and use lots of water to “hard” swallow. Wishing your dad the best. Life is so very different.