← Return to Autoimmune Diseases and Fatigue

Discussion

Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)
Comment receiving replies
@astaingegerdm

I have had autoimmune GI illness on and off for 13 years. My fatigue can be extreme, basically lying in my bed panting. After being evaluated on and off at Mayo I finally was treated with Imuran- the extreme fatigue disappeared. I have had a few episodes since beginning of the pandemic, but not continuing. Maybe response to Covid vaccines?
I was also diagnosed with sleep apnea. As you may know it leads to fatigue, at times extreme.
I also had taken steroids on and off early on- looking at photos of my face I was very puffy.
After treatment I was able to lose weight and discontinue CPAP.
If you think it could apply to you then please have a sleep study.

Jump to this post

Replies to "I have had autoimmune GI illness on and off for 13 years. My fatigue can be..."
Lorena Egas | @lorena1egas | Jan 29, 2023

Hi @astaingegerdm ive been diagnosed with sleep apnea (grade 1). I can’t use my CPAP then I had a face surgery (so have to wait). The biologic I am usin is Ilaris (canakinumab) every 28 days. I’ve stopped it for ankle surgery (already 2 weeks) and experienced the fatigue. (I don’t have fatigue while I am on it). Now the compression at my back head has disappeared. I have low fever but my mind is alert again:). I want to asked you if you had experienced a trial of no biologic and how have you feel being of it (special the mind and mental fatigue). Thanks

VIEW AND REPLY