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Is kidney disease becoming an epidemic

Kidney & Bladder | Last Active: Feb 19, 2023 | Replies (36)

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@sharonfranks1119

Thank you so much for your reply. I was informed I was a stone maker to you are in CKD stage 3a. Why wasn’t I informed sooner, like stage 1. I could have radically changed my diet and perhaps not advanced. Next week I have my 4th kidney stone removal surgery in 18 months, and there will be more.
I agree that some doctors don’t like patients that are well informed and advocate for themselves.

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Replies to "Thank you so much for your reply. I was informed I was a stone maker to..."

@sharonfranks1119 Welcome to Mayo Clinic Connect, in case I hadn't had the opportunity to do that before now.

My father was prone to kidney stones. My older sister had had them a couple of times solved with lithotripsy, and I had one back in the 80s, that passed. I was working for a small animal veterinarian, and we put myself on the x-ray table and took a picture. Bet that wouldn't happen today!!

You'll read in the article I linked here, that stones can be of three types. It is important to understand what kind you are prone to, to get the best treatment plan for you. Beyond diet, genetics can play a part in the whole scheme of things. Has your medical team told you what type of stones your body is producing?

As for being educated in our own health concerns, it has been a relief to some of my doctors that I played dot-to-dot and tied things together. I don't expect them to know me better than myself. Those that have a negative response to me being my own advocate, well, I replace them with someone who is fine with that. My medical team now consists of my primary care, nephrologist, hematology oncologist, dentist, and dermatologist. In the wings are the urologist, orthopedic specialist and neurosurgeon.

https://www.mayoclinic.org/diseases-conditions/kidney-stones/symptoms-causes/syc-20355755
Ginger