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Neuroendocrine tumor: What tests are used for diagnosis?
Neuroendocrine Tumors (NETs) | Last Active: Feb 17, 2023 | Replies (37)Comment receiving replies
Hello @monkey5333 and welcome to the NETs discussion on Mayo Connect. Yes, I have had the Octreotide scan several years ago. It is somewhat outdated now as there is a newer scan available referred to as
– 68Ga DOTATATE Positron Emission Tomography (PET) Now at Mayo Clinic
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
If you read the opening information, written by a radiologist at Mayo Clinic, you will learn how this test is more helpful in finding NETs than the previous test. If the clinic you are being seen at does not have this scan, you might inquire about another clinic in the area which might have it.
You mentioned that your doctor is trying to confirm a NET in the intestine. Have you had other tests, biopsies, and/or symptoms that have led him to this conclusion?
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Yes I am actually not at a clinic but a hospital. They have done a CT, ULTRASOUND and my surgeon saw something on the CT that made him suspicious in my bowel. He is doing an colonoscopy and endoscopy but doesn’t think he can reach the tumor. He wants to do the scan to identify that it is a NET and any other anomalies that may exist. My pancreas was also shriveled. I came in because of a pain crisis. Any info you can share would be greatly appreciated. The pain was in my abdomen extending around to where my right kidney is located and it was excruciating.