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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Mar 10 10:12pm | Replies (344)

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@mdr3

Hi there. Dxed with Stage IIIc ILC (5 tumors, 10/16 diseased nodes -- diagnosis upon surgical pathology). Even the team didn't know how advanced it was going in -- I had no symptoms of bc, so I was really surprised. I had had annual mammograms with ultrasounds included. This was Feb. 2019., at age 69. Presently NED, and feeling great! You ask about the treatments: 4 mos. dose dense chemo (AC and Taxol). 6 weeks radiation, 5 days a week. 3 years Zometa infusions, every 6 mos. 2 years Tamoxifen, which I changed to 8-10 years Anastrozole based on a second opinion. I mention all these details to outline some thoughts to share: I pushed for surgery asap (ended up being modified radical mastectomy, clear margins). I did all the treatments on schedule as quickly and compactly as possible (because this does matter). I got a second opinion at a nearby cancer hospital (as opposed to just using the opinions in our local "cottage" hospital). I interviewed 2 surgeons for the job, and got the best one. Used a porta-cath instead of IV infusions (just had that out 2 days ago). Kept working throughout (this was important to keep up energy) and tried to be as upbeat as possible. I wish for you the very best, and feel free to question me if you wish!

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Replies to "Hi there. Dxed with Stage IIIc ILC (5 tumors, 10/16 diseased nodes -- diagnosis upon surgical..."

Thank you for posting. My diagnosis was very similar. Also had annual mammograms. As we now know, lobular hides in the density of the breast. Double mastectomy and am now in the same regimen for treatment. Chas to have my 3rd chemo last week but broke out in an all body rash after my last chemo and the rash is just too nasty to even use my port. They aren’t sure what caused it and am being treated for herpes but whoever heard of it all over the body? It’s painful and itches like crazy. Am concerned about missing a regular chemo session. 14-17 nodes were cancerous and it metastasized in the interior of the breast skin. Am 71.