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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@dbeshears1

This neuropathy affects us all so differently, and some have accompanying spine issues, others like me do not. My idiopathic PN slapped me very quickly; one day my legs felt weak, then 10 days later I was in a wheelchair, with minimal hand function as well. I lived in the wheelchair for 6 months, before aggressive PT helped me build muscle strength and regain balance. I use my walker when out, but today can walk unassisted short distances and even drive. I still have bad neuropathy and take Gabapentin to help make it tolerable, but hands down, I got better from where I started, not worse, and have been at this plateau for a few years.Like many others here, what I’m trying to do is maintain strength and energy to do anything we might be able to control to maintain our current state and not get worse. Think positive, and borrow from the tips from this group to see what you might be able to do to help stop the slide!

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Replies to "This neuropathy affects us all so differently, and some have accompanying spine issues, others like me..."

Hi Debbie you're story is inspiring. I hope you the best. I'm dealing with increased muscle weakness in my arms and body and It's very hard to come to terms with. I hope I can regain strength like you did some day. I have to get out my head because it's negative and super sad. I guess making myself think positive should be a daily practice. Anyways take care.