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Neuroendocrine tumor: What tests are used for diagnosis?

Neuroendocrine Tumors (NETs) | Last Active: Feb 17, 2023 | Replies (37)
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@monkey5333

My surgeon suspects that I have a carcinoid tumor in my intestine and is going to do a Octreotide scan to confirm. Has anybody had any experience with this type of scan?

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Replies to "My surgeon suspects that I have a carcinoid tumor in my intestine and is going to..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 28, 2023

Hello @monkey5333 and welcome to the NETs discussion on Mayo Connect. Yes, I have had the Octreotide scan several years ago. It is somewhat outdated now as there is a newer scan available referred to as
– 68Ga DOTATATE Positron Emission Tomography (PET) Now at Mayo Clinic
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
If you read the opening information, written by a radiologist at Mayo Clinic, you will learn how this test is more helpful in finding NETs than the previous test. If the clinic you are being seen at does not have this scan, you might inquire about another clinic in the area which might have it.

You mentioned that your doctor is trying to confirm a NET in the intestine. Have you had other tests, biopsies, and/or symptoms that have led him to this conclusion?

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