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Tongue Fasciculations

Brain & Nervous System | Last Active: Aug 11 8:06am | Replies (22)

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@deborahfischer

Had fasciculations all over my body, a numb gum and tingling tongue. A DMX xray showed my skull isn't sitting on my cervical spine properly, jaw doesn't open and close properly and most ligaments lax or torn connecting skull to spine. Hopefully you aren't suffering same and the fasciculations will subside over time like mine did after a year. I was tested for ALS through nerve testing when they started-negative.

Through research, I wonder if craniocervical instability is a cause but half the doctors I've seen have never heard of the condition. I'm having difficulty finding a nationwide specialist.

Good luck.

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Replies to "Had fasciculations all over my body, a numb gum and tingling tongue. A DMX xray showed..."

Hello, in reference to your sentence “A DMX xray showed my skull isn't sitting on my cervical spine properly, jaw doesn't open and close properly and most ligaments lax or torn connecting skull to spine.” Is this Chiari Malformation? My niece has it. She has very bad headaches. Eventually it has to be treated surgically.