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@billie6977

I just seen the survivor corps here and they are at least an hour away from me. I am in better spirits than the first part of the week.,but physically feeling like I am going back to say one. Burning in my neck w/low mobility. More nausea, constipation, feeling dehydrated, head ache and Tinnitus. All day has been long and all I wanted to do is sleep. I thank you for the information on the survivor corps. We are looking and Tuesday I have my appointment with PCP. So here is hoping we have good results with this one. Thanks again.

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Replies to "I just seen the survivor corps here and they are at least an hour away from..."

Hi @billie6977. Just a thought as your journey sounds so similar to mine and after a year I definitely found that any small repetitive tasks like typing, talking, eye movement reading etc. really brings on symptoms. Seems like our energy reserves depleted easily and hard to catch back up. So just suggestion, maybe really look at time each day doing any of this to see pattern related to how you’re feeling. For me the hardest part was and still is sticking to the drastic limited time difference my body can handle with all the known daily responsibilities let alone the “work” of your healthcare. Truly hope this helped in the kind light intended!

You have to do what you can for yourself. I’m sorry for the situation you are dealing with.
Many “professionals” don’t know what to do. We won’t know a lot for a while, but don’t give up. Those who have had this are with you. Good luck.