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Neck and face red flushing

Neuroendocrine Tumors (NETs) | Last Active: Jan 31, 2023 | Replies (18)

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@hopeful33250

Hello @elkeann and welcome to the NETs discussion on Mayo Connect. Facial flushing is often a symptom of carcinoid syndrome. While I have not experienced it personally, a number of members of Connect have mentioned this symptom including @newbienet, @liz925 @browndog @sophiarose @carcinoid23462 @gaylejean, who have also experienced flushing with NETs, and I hope they will share their experiences with you.
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Monthly injections of Laneotride or Octrotide are often used to control the symptoms. Has this been suggested to you? If not, you might ask your doctor about the benefits of this treatment.

You do not mention the location of your NETs. NETs are generally found in the digestive tract or the lungs. Have you had surgery or other treatment?

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Replies to "Hello @elkeann and welcome to the NETs discussion on Mayo Connect. Facial flushing is often a..."

This is all very new to me. I was just diagnosed in December 2022. I have had 1 injection of the Octeriotide. My facial flushing seems to be getting worse. Or maybe it is that I am just noticing more often. I go for my Dotatate scan on February 1st to see where all my NET is located. So far it is just on my liver, which came back from my 2 biopsies, and Octeriotide Scan.