← Return to Functional Neurological Disorder (FND)

Discussion

Functional Neurological Disorder (FND)

Brain & Nervous System | Last Active: Nov 8, 2023 | Replies (123)
Comment receiving replies
@tywebb

I too have been diagnosed in August of 2022. I am still struggling with understanding it 100%. I have seen multiple Dr's, neurologist, psychologist, and a neuropshycolgist. I am doing CBT currently buy have not had any changes in seizures or balance. Severe headaches and extreme fatigue. Electric shoke feeling along with ice water sensations in legs and arms and the back of my head. I am making an appointment with the Mayo Clinic to possibly get a plan to help lessen this.

Jump to this post

Replies to "I too have been diagnosed in August of 2022. I am still struggling with understanding it..."
Amanda Roe | @amandajro | Jan 27, 2023

Hello @tywebb and welcome to Mayo Clinic Connect. It is always a great idea to reach out for support when you are feeling like you're struggling. You mentioned seeking an appointment with Mayo Clinic. If you are in need, you can use this link: http://mayocl.in/1mtmR63

VIEW AND REPLY
austex | @austex | Oct 21, 2023

You might want to check out Familial Hemiplegic Migraine or Sporadic Hemiplegic Migraine Episodes. The term "Migraine" gets waaay too much significance in the diagnosis ( in my opinion) as it is the seizures, paralysis, fatigue etc followed by a humdinger of a migraine that is the whole of the issue. I got a diagnosis of FND from an idiot neuro before doing my own research and genetic testing to prove the Hemiplegia - which has known treatments that work (intermittently ).

VIEW AND REPLY