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DiscussionJust diagnosed with pancreatic NET stage 1
Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)Comment receiving replies
Replies to "After they removed the tumor they found another two ?"
They saw one tumor on 5/2017 via an EUS. It was 6x10mm and biopsied to confirm a pancreatic NET. The 1 surgeon did a partial pancreactomy removing the neck, but missed the tumor. I had a FDG PET scan on4/2018 and they saw the same missed NET and it had grown. I waited for better insurance so I had a partial Whipple at Mayo on 2/2019 and the surgeon found the original tumor that was in the tail and found a second tumor on the head of the pancreas. I guess if I didn’t have the second surgery the second tumor may not have been detected, unless another PET was done. We believe I don’t have receptors. I get yearly MRI and labs for follow up!