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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: May 26 10:50am | Replies (6004)Comment receiving replies
My name is Gary and I am 77 years old. I was diagnosed with idiopathic peripheral neuropathy 12 years ago and was told if it begins in a mild form it generally stays that way. Conversely if it begins aggressively it gets progressively worse. Is this true. My tingling and burning in the toes has progressed to mild electric shocks in the lower legs with stiffness and mild weakness in the quads. I have been taking Metanx for the entire time. Embarrassed to say I am not sure it works. A herniated lumbar disc with stenosis and radiation down the leg has come and gone a few times. Walking a few miles everyday no matter what has made the difference. Not sure what future holds
Replies to "My name is Gary and I am 77 years old. I was diagnosed with idiopathic peripheral..."
HELLO GARY,
I WISH I COULD OFFER YOU INFO, WITH REGARD TO.NEUROPATH
BUTI HAVE ONLY RECENTLY BEEN DIAGNOSED WITH NEUROPATHY
AND I AM SQUEAKY BRAND NEW TO THIS CONDITION. I DO HOPE OTBERS ON THIS SITE WILL BE ABLE TO ASSIST YOU.
MY BEST WISHES TO YOU THAT YOUR PAIN IS BROUGJTNTO.AN END.SOON!
BEST OF LUCK GARY,
MMKSF
This neuropathy affects us all so differently, and some have accompanying spine issues, others like me do not. My idiopathic PN slapped me very quickly; one day my legs felt weak, then 10 days later I was in a wheelchair, with minimal hand function as well. I lived in the wheelchair for 6 months, before aggressive PT helped me build muscle strength and regain balance. I use my walker when out, but today can walk unassisted short distances and even drive. I still have bad neuropathy and take Gabapentin to help make it tolerable, but hands down, I got better from where I started, not worse, and have been at this plateau for a few years.Like many others here, what I’m trying to do is maintain strength and energy to do anything we might be able to control to maintain our current state and not get worse. Think positive, and borrow from the tips from this group to see what you might be able to do to help stop the slide!
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My diagnosis is PNS.
I understand the tingling and burning that you are experiencing. To start, I am sorry to here of your condition. I was unable to walk. My neurologist prescribed low doses of Lamictal and increased milligram slowly. 15 years after the onset of this condition rarely do my feet burn. I continued my care with the Neurologist that first started my case.
Wishing you the best.
@Hopefully53