I am still on the Tegretol, and it is working great to eliminate many of the neuropathy symptoms. Things that are gone: burning pain in my toes, heart palpitations, skin that was so sensitive to light pressure. I am so grateful for that. But the neuropathy continues to progress. I guess the way to describe the pain I have now is aching, tender, sore, constant. I get some relief with Percocet 7.25mg, 1/2 tablet 2-3 times per day. Baclofen helps when I’m trying to nap, or feel extra pain after using my body by taking a walk, or physical therapy. So Tegretol doesn’t eliminate all my pain, just the endless burning.

Hope that makes sense. I am going to a Dysautonomia Clinic in a few weeks, reluctantly. I don’t know why I’m resistant to that, especially since I have a resting heart rate in the 90’s now, and constipation and/or diarrhea are a constant now, instead of occasional. I feel overheated much of the time, and my face sweats several times a day. All signs of Dysautonomia.