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Autoimmune Diseases and Fatigue
Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)Comment receiving replies
I, like others here, suffer from fatigue. It is overwhelming and ruins my life. I have no energy and if very active suffer from post-exertional malaise. I have Polymyalgia Rheumatica, diagnosed almost five years ago. I have been on various amounts of prednisone ever since. After trying different treatments, my rheumatologist tried Actemra infusions and I am in remission! I am only on .5 mg of prednisone, soon to be totally off. However, my fatigue has not abated and even gotten worse since I had severe Covid in 2021. I believe I have long Covid as I have never regained my lost sense of smell and have some minor lung damage. I am wondering if I should be tested for Epstein Barr Virus which can be reactivated by Covid. I also wonder if I should request my adrenal glands be tested since I have been on steroids so long. I sleep so much, yet am always tired. Thank goodness I am retired. I would appreciate any response/comments. Thank you.
Replies to "I, like others here, suffer from fatigue. It is overwhelming and ruins my life. I have..."
Yes, I would see an ENT doctor to be tested for Epstein Barr and others. Talk to your rheumatologist regarding an endocrine consult to check your adrenals.
After pandemic studies have speed, specially studies for long covid brain fog. Use the information with your doctors. Early evidence suggests a cocktail of two existing medications could mitigate or eliminate brain fog among patients with long COVID-19, according to researchers at Yale University in New Haven, Conn. The research, published Nov. https://www.yalemedicine.org/news/long-covid-brain-fog-treatment
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I have an autoinmune diagnosis. The biologic stop all symptoms but when I need to stop it or when I am close to the next injection (1 each month) I experience extreme fatigue (I can sleep the whole day). I need to stop activities and my work status suffers. I would like to know effective treatments and solutions for those days. I am already 2 years on remission but need my brain to be on and not off