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66...Exact same thing? PMR flare up with blood markers all in normal ranges? What docs aren't getting in their arrogant heads is that a lot of the times those blood markers only show positive at ONSET of PMR....flares do not necessarily have raised markers. Let me guess, Mayo hasn't helped you either...?
Replies to "66...Exact same thing? PMR flare up with blood markers all in normal ranges? What docs aren't..."
@johnlo I have 2 forms of Vasculitis. One is Giant Cell Arteritis, the other one Polyarteritis Nodosa. Giant Cell Arteritis is a close “cousins of PMR.
My blood tests show almost nothing now, however I have symptoms.
I have seen a Rheumatologist at Mayo, and I have a Rheumatologist in my community. Both treat situations like this cautiously. Prednisone is a help, but it is evil on your body. I have been on and off it for the last 6 years. I would rather not take it if I can.
Right now I’m taking hydroxychloroquine. It’s not a two headed monster like prednisone.
I’m so sorry you are having so much pain and frustration. Sometimes it feels like you are the only one going through something like this, but you’re not!
S.
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@johnlo, I didn't have that issue with my Mayo rheumatologist. You can have PMR with normal CRP and ESR levels but a lot of doctors seem to be unaware of that fact which is why I would seek out a rheumatologist if it were me, or maybe have a chat with your doctor and bring along a reference for the discussion.
-- Polymyalgia rheumatica with normal values of both erythrocyte sedimentation rate and C-reactive protein concentration at the time of diagnosis: a four-point guidance
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5911650/