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BillyMac65 (@billymac65)

Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: May 10 9:57am | Replies (1408)

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I find your discussion interesting. I was diagnosed with SM in 2019 by a biopsy that turned into a major exploratory surgery in Nebraska. He was so sure he’d find cancer. The mass had been seen on a CT. I had complained about having pain. I went on a gluten free diet. It helped somewhat, but overall I feel much better so I stayed on it. When I went to Mayo, they were confident my pain had nothing to do with my SM. They did treat me for some esophageal issues which improved life greatly. The biggest issue is they are treating me for a huge hernia I developed as a result of the first surgery. It was necessary for me to lose weight before surgery to ensure it’s success. They are helping me with my diet and healthy eating. The change in my eating has drastically improved the pain in my abdomen. I’ve lost 50 pounds, eat a low fat, non-sugar and non alcohol diet. I think all of that combined with a fairly stress free life (I retired after the 1st surgery) has made the difference. I truly do not want to take meds. I did celebrate Valentine’s Day with all the forbidden things I just mentioned and had a very rough Monday. For me………it’s all about the diet. Hernia surgery is in March.

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Replies to "I find your discussion interesting. I was diagnosed with SM in 2019 by a biopsy that..."

Welcome @constancelee to our discussion. Good job loosing weight -never easy! The first time I mentioned good as a strong irritating factor on the Facebook page I had the admin give me quite a blast. But I have continued to talk about it and get ideas from others -and it seems many of us have real problems with certain foods. Maybe a chemical thing somehow but I know -for me-it’s another factor like any other stressor. Good luck with your surgery! I’m certain it will improve many parts of your life!

Welcome @constancelee . I also had a surgical biopsy done to confirm the diagnosis was MP and not anything worse. The doctors were worried about it being lymphoma. I'm sure that I got the better diagnosis. What is SM? Do you still have it, despite also having a hernia? I have become painfully aware that our bodies can have more than one thing go wrong! Congrats on the weight loss, btw! That's a wow!!!

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