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@cantek

You are learning to be your own advocate, the fact that he can’t tell you the plan of care says it all, RUN!
You need an expert in the field of autoimmune diseases not a novice. A Hemotologist has no business treating or testing for autoimmune, it is VERY complex.
You will also be learning about self care.
I follow Mark Hyman from the Cleveland Clinic on Facebook, he produces lots of educational videos on regarding diet, rest and exercise with Autoimmune. Mark is the head of Functional Medicine at Cleveland Clinic which is a part of their program for autoimmune treatment.
I personally use accupuncture, helps tremendously for the fatigue, and massage therapy for muscle and joint pain as well as hot/ cold therapy.
I would email Mark and ask for a recommendation for a good Rheumatoligist and get in there asap. The University hospitals are your best bet.

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Replies to "You are learning to be your own advocate, the fact that he can’t tell you the..."

Thank you! I live between Cleveland and Pittsburgh, and Buffalo is about 2 hrs away. I have always heard good things about Cleveland Clinic in general, so I may be exploring your recommendation. Appreciate the advice and support.