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Floating stool, unintended weight loss, feel full relatively quickly
Digestive Health | Last Active: Aug 24, 2023 | Replies (57)Comment receiving replies
Hi Geannydee,
My pancreas looked fine on ultrasound. After doing some intense research on my own, I do believe I have EPI. My doctor sent home the stool fat testing kit, and I am awaiting clarification from his nurse on how exactly to test. I was a bit overwhelmed by the need to eat 100-150 fats a day, and I used to love sweets!
How long have you been diagnosed? I’m a bit scared by you comments on the cost of the medication. I am already disabled by other causes and live on Social Security and a small pension. Am hoping that, if I do have EPI, that I qualify for help from the drug company, as well.
Wishing you the best of health’
Susan
Replies to "Hi Geannydee, My pancreas looked fine on ultrasound. After doing some intense research on my own,..."
I had similar problems as you. I found out (through this site)that I had Mals (Mesenteric Artery Ligament Syndrome). I had epigastric pain, lost 35 pounds, digestive issues, and pain radiating to my back. No doctors diagnosed until I found a specialists. There’s a Facebook group Mals Awareness that is very informative. Hope you can find answers.
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Oh Susan! I’m so sorry, I was hoping that I was wrong.
But PLEASE contact the company:
Prescription Assistance
I’ll get you the phone number to call.
You will need to send them proof of income and tax return along with a prescription from your gastroenterologist
There are also forms to complete and they can be faxed or mailed. I strongly encourage you to also contact the National Pancreatic Foundation. They have been a wonderful source of information. Please go to their website and you will see my story. Please mention me and tell them that I want you to have my email address! I will then give you my phone number.
It will take a few weeks for you and your gastroenterologist to determine your medication schedule and your nutrition is your biggest priority!!!
Maybe your insurance will cover a consultation with a registered dietitian. They are the best source for nutrition advice as they have the most education and are properly trained and licensed.
I am here and want to encourage you and congratulate you for advocating for yourself!!!
It’s a confusing and seldom heard of disorder.
But NOW you have a plan and HOPE!!!
🫶🏽